Our MISSION

Batten disease claims the lives of most children and teens carrying this disease.

Our mission is to raise awareness and money through Project Sebastian for life-saving Gene Therapy Replacement. This therapy can save our son Sebastian's life and many others. Our goal is to raise $3.5 million. Help us get there.

Project Sebastian
podcast
 
RESEARCH

We have partnered up with the world’s leading researchers studying gene transfer approaches to pediatric orphan diseases. This groundbreaking and innovative approaches allow us and others a real chance to eradicate this disease. A, first of its kind, a clinical trial has begun at Nationwide Children’s Hospital to evaluate this investigative treatment, providing hope for children with Batten disease all around the world. Helping others and sharing this info is a must!

SUBSCRIBE

Subscribe Below!

Join us at one of Santa Clarita's best parks!

                 West Creek Park

24247 Village Circle, Valencia, CA 91354

On-line registration brought to you by

activelogo.png
 
ProjectSNew-Large.png

GIVE TODAY TO HELP save a life

 
 
 
Contact Us

P.O. Box 800034

Santa Clarita, CA 91380

Info@projectsebastian.org

Menu
SUBSCRIBE

© 2019  Project Sebastian. Created by Design With Artisan.

  • Black Facebook Icon
  • Black Twitter Icon
  • Black Instagram Icon