Community support group meetings
Henry Mayo Hospital Community Education in collaboration with Project Sebastian is now offering a rare disease support group.
We now offer in-person and online meetings for rare disease families. This group setting provides you and your family with much-needed support on how to cope with the issues faced every day in rare diseases.
RARE DISEASE SUPPORT GROUPS
Please join us Thursday evenings at 7:00 PM for a rare disease support group. All are welcome to participate. Family, friends, teachers, caretakers, and paraprofessionals in the rare disease and special-needs community. Join us as we share our experiences, strengths, and lessons about our loved ones suffering from these horrible diseases. This is also a hybrid meeting on Zoom.
Or meet with us in person!
Registration is required for in-person
Education Center at Henry Mayo Fitness and Health
24525 Town Center, DriveValencia
Call 661-414-4856 or 661-200-2300 for more details.
Families, Friends, doctors, caregivers, and siblings are welcome!
Another great resource in rare diseases is "We are Brave". A group that focuses primarily on Moms!
Click the link below